Click to read our introductory post.
Our son, Kaiden, has Down Syndrome and had Infantile Spasms (benign myoclonic seizures) from approximately 7 months of age to 16 months of age. By 16 months old, Kaiden was very developmentally delayed, both cognitively and physically. Everyone including family, friends, and doctors said it was just Down Syndrome and I needed to expect this. But by trusting my instincts, keeping food intake and seizure logs, I eventually figured out all of the foods triggering Kaiden's seizures. Eliminated those foods (carrots, sweet potatoes, and all nightshade foods), and not only did his seizures stop, but his development began to FLY!
Down Syndrome gave Kaiden hypotonia and motor (limb) apraxia, and the Infantile Spasms took his speech (speech apraxia). The seizures weren't the hardest part of this journey; even though Kaiden can't yet speak verbally and can barely sign thanks to both apraxias, it's getting others to understand that he CAN and DOES think and learn. Since he can't respond in a way people are familiar with, they often dismiss him entirely and don't try which is incredibly frustrating!
There is SO much misinformation in mainstream medicine regarding not just Infantile Spasms, but Down Syndrome, too. A clean diet goes a very long way, and utilizing supplements that are right for the individual helps, too. This blog is our journey.